Videos Focus on Personal Stories from Parents and Participants in SPARK
Nationwide — SPARK, the largest study of autism families across the United States, hopes a new video campaign helps the research initiative capture the attention of more Black and African American individuals and families. SPARK contends that autism research is more powerful when children and families from varying racial and ethnic groups are fully represented. Since launching nationally in April 2016, SPARK has enrolled more than 120,000 individuals with autism spectrum disorder (ASD) – 80% autistic children and 20% autistic adults. So far, more than 15,000 African American and Black autistic individuals and families – roughly 12.5% – participate in SPARK.“We have a good number of African Americans and Black autistic individuals and families involved in SPARK, but we really want to capture as many people as possible to get that richness and diversity we need to fully have the chance to uncover the secrets to a condition that has implications for a lot of other people,” says Dr. Wendy Chung, Director of Clinical Research at the Simons Foundation Autism Research Initiative and principal investigator of the SPARK study. “We hope that hearing some of the personal stories of our participants will inspire others to join our efforts so we can move toward equal representation and provide everyone with an equal chance to have a happy, healthy, and productive life.”
In the first of two videos, single father Rico Winston shares his story of how his son, Isra’El, was diagnosed with autism at 2 years old. Through his own research, he found his way to SPARK, and now he and SPARK are committed to improving Isra’El’s life. He provides five tips on how a dad can help his child with autism. See his video here: Rico Winston’s Five Tips.
The second video highlights Darnell Newsum, mother of two adults with ASD and one of the parents of autistic children and autistic adults among the SPARK staff. She focuses on her youngest child, her daughter, and shares how her journey to SPARK continues to enrich her family’s life. See her video here: Darnell Newsum Journey
About
SPARK is a national online autism research initiative that connects people who have a professional diagnosis of autism and their biological family members with research opportunities to advance our understanding of autism. SPARK’s goal is to not only better understand autism, but also accelerate the development of new treatments and supports. SPARK has partnered with 31 clinical sites across the country, as well as autism organizations, service providers, and key influencers to help educate the public about SPARK and to recruit participants. Through these strategic partnerships, SPARK hopes to reach and engage a diverse and large number of individuals and families who are affected by autism.
One of the benefits of participating in SPARK is the return of information – both behavioral and genetic – back to the participants. For more information visit SPARKforAutism.org/togetherwecan or call 1-844-54-SPARK (77275).
For press inquiries, contact Vivian King, GoldStar Communications at vking@goldstarc.com or (414) 899-3027.